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Liebe Mitglieder und Homepagebesucher,
am 28.02.2022 findet der weltweite „Tag der seltenen Erkrankungen“ oder auf englisch „Rare Disease Day“ statt. Auch wir als Turner-Vereinigung-Deutschland e.V. wollen darauf aufmerksam machen und mit diesem Beitrag helfen den Tag bekannt zu machen.
Geschäftsstelle
Herr Wolfgang Schmidt
Am Bornstück 1
65599 Dornburg
Telefonisch erreichbar jeden 2. Donnerstag im Monat 14-16 Uhr unter 06436-911754
oder jederzeit per E-Mail: geschaeftsstelle@turner-syndrom.de
Beratungs- und Informationstelefon
Frau Melanie Braun
(Mutter einer Tochter mit UTS)
Telefon: 06340 – 3513294
Mobil: 0178 – 2646143
E-Mail: beratung-eltern@turner-syndrom.de
Frau Antje Angermüller (Betroffene)
Mobil: 0178 – 2656209
E-Mail: beratung-betroffene@turner-syndrom.de
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