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Frau Dr. Ivonne Bedei von der Gynäkologie und Pränataldiagnostik und ihre Doktorandin Frau Kieslinger bitten uns um Unterstützung bei einer Umfrage. Sie haben zusammen mit Frau Dr. Müller und Prof. Brosig von der Kinder-Psychosomatik der Uniklinik Gießen einen Fragebogen über das Neugeborenen-Screening bei UTS erstellt.
Geschäftsstelle
Herr Wolfgang Schmidt
Am Bornstück 1
65599 Dornburg
Telefonisch erreichbar jeden 2. Donnerstag im Monat 14-16 Uhr unter 06436-911754
oder jederzeit per E-Mail: geschaeftsstelle@turner-syndrom.de
Beratungs- und Informationstelefon
Frau Melanie Braun
(Mutter einer Tochter mit UTS)
Telefon: 06340 – 3513294
Mobil: 0178 – 2646143
E-Mail: beratung-eltern@turner-syndrom.de
Frau Antje Angermüller (Betroffene)
Mobil: 0178 – 2656209
E-Mail: beratung-betroffene@turner-syndrom.de
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